Clik here to view.
Let me re-introduce myself…
can·cer ˈkansər/ – disease; causing the body and mind to adapt, overcome, and embrace change. Quality of Life: What do these three seemingly simple words mean to you? Someone who is living with a...
View ArticleClik here to view.
“It’s not me…!” It’s my cancer!
“Harmonious self regulation is the body’s natural state, stress pulls you into another state, of heightened biological responses that triggers a flow of hormones, increased heart rate, stimulate the...
View ArticleClik here to view.
The grief process…
Someone recently asked me how I deal with the anger that comes with being dismissed for so long with rare disease. So you just got your diagnosis. It’s hard to know how to feel, right? Thankful that...
View ArticleClik here to view.
Let’s talk about: pain management
In this post I’m going to give you a road map of how I manage with pain with different techniques for severe flare ups AND daily prevention. I’ve dealt with my fair share of pain, I remember living...
View ArticleCaregiver Chats: our story
www.instagram.com/tv/CTV0qRilPhD/ If you’d like to watch the replay of our LIVE chat, I interviewed my husband for the first time ever about our journey. He shares some incredible insight about how you...
View ArticleClik here to view.
How to conquer ‘Scanxiety’
Friday, September 10th Another day, another hospital, another scan. It Will Be Okay I can call myself an expert by now, I would estimate in my short time on this earth… I’ve had at least 70 scans....
View ArticleClik here to view.
“Listen to your body”…?
Hello? Body? I’m listening! you did WHAAAAT?! I’m sure you’ve heard this phrase, probably hundreds of times. Although it is great advice – what does it actually mean?! There’s a lot of different ways...
View ArticleClik here to view.
Gallium 68: prep & overview
Congratulations! You’ve are having the ‘gold standard’ imaging with relation to pheochromocytomas and paragangliomas. The Gallium 68, I have had many of these scans, all the way from clinical trial...
View ArticleClik here to view.
Health Update: navigating multiple conditions
I feel like I have so much to discuss since yesterday’s appointment, so here we go. NET CANCER DAY has really got me thinking a lot about how much responsibility falls on us as the patient. I’ve...
View ArticleClik here to view.
Unanswered Questions and a Mammogram?
Last oncology visit of the year I count appointments, small wins, month to month, day by day, because there’s no line we cross or distinguishing number that says we’re ‘done’. This was originally our...
View Article